The night Kira called to say they were thinking of adopting him, Trevor and I sat in bed and started googling Down Syndrome. Sure we had each known some kids we went to school with, with Down Syndrome, but how much did I really know about it? How much did I care until it became relevant in my life? I learned new things about Down Syndrome that night, as we anticipated the possibly of our new family member.
The other day for work I supervised the students while they volunteered to do the hair and make up for a local boutique fashion show. One of the models was a young woman with Down Syndrome. I have actually not had an encounter with someone (adult) with Down Syndrome since high school, and now having a Down Syndrome nephew, I paid closer attention to her then I normally would.
She was so sweet. She kept on asking me if they had anything slimming because she was worried about her weight and looking good on stage, and my heart just melted. She was no different then any girl her age, concerned about looking good on stage, a true woman :)
But then I had flashes of guilt. Would I have paid as close attention to her if I didn't have a nephew with Down Syndrome? Would I have cared as much? With SMA and Down Syndrome I didn't have an interest in these things because they were not a relevant part of my life until now.