tag:blogger.com,1999:blog-699693038908396892.post8519354585117337048..comments2024-03-27T02:15:22.010-07:00Comments on Crowley Party: Evan & SMA.Alycia Grayce (Crowley Party)http://www.blogger.com/profile/16438358678220412938noreply@blogger.comBlogger30125tag:blogger.com,1999:blog-699693038908396892.post-91878938640943824632012-05-09T20:16:52.810-07:002012-05-09T20:16:52.810-07:00I just tweeted it! He is SUCH a cutie pie! I would...I just tweeted it! He is SUCH a cutie pie! I would be scared to hurt him too, but there is something so incredibly fulfilling in helping those in need...especially if they are family <3Janna Reneehttps://www.blogger.com/profile/03803772675815432282noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-40083563453419379102012-05-06T10:27:42.590-07:002012-05-06T10:27:42.590-07:00Thank you so much for sharing this. What a beautif...Thank you so much for sharing this. What a beautiful and extremely special little boy.Ariel Tyler Henleyhttps://www.blogger.com/profile/12054344857704361835noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-13192699897927906522012-05-04T20:26:07.551-07:002012-05-04T20:26:07.551-07:00I had no idea Kira was your sister! I know her fro...I had no idea Kira was your sister! I know her from the oboe studio at BYU! I really hope this video idea works out. Evan seems so sweet from all of Kira's photos and videos.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-32878055117990190882012-05-04T20:17:36.238-07:002012-05-04T20:17:36.238-07:00This comment has been removed by the author.Meganhttps://www.blogger.com/profile/05928900557110236473noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-27582510063461044902012-05-03T18:20:51.295-07:002012-05-03T18:20:51.295-07:00I'm so glad you shared this post.I'm so glad you shared this post.That Girlhttps://www.blogger.com/profile/08004439474693190019noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-57843429573096294962012-05-03T05:11:41.821-07:002012-05-03T05:11:41.821-07:00What an awesome idea! Your nephew is such a cutie...What an awesome idea! Your nephew is such a cutie. It would be amazing if he could be part of the new clinical trials. Praying for your family!Emily @ Emmy Junehttps://www.blogger.com/profile/14120025726793122856noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-37783462175814641712012-05-02T21:21:57.445-07:002012-05-02T21:21:57.445-07:00Beautiful post!Beautiful post!Lisahttps://www.blogger.com/profile/00906385068751340719noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-11056731871816382942012-05-02T20:45:26.698-07:002012-05-02T20:45:26.698-07:00Nothing is impossible! Your sister is talented and...Nothing is impossible! Your sister is talented and amazing! Bless her, and bless your nephew! :)Bridgethttps://www.blogger.com/profile/08173437777446011833noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-86676504894049273572012-05-02T18:34:52.144-07:002012-05-02T18:34:52.144-07:00I'll pass the word for sure! Add it to my Wedn...I'll pass the word for sure! Add it to my Wednesday Youtube video posts!Rachelhttps://www.blogger.com/profile/14309920235271421080noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-5107007080544903812012-05-02T18:09:25.930-07:002012-05-02T18:09:25.930-07:00He is precious! You are a good aunt for caring so ...He is precious! You are a good aunt for caring so much about him. I'll be praying for him!<br /><br />www.samspinkslippers.blogspot.comSamhttps://www.blogger.com/profile/05993132279008449217noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-91767551665437635342012-05-02T17:13:41.013-07:002012-05-02T17:13:41.013-07:00ohh i heard about sma, scary desiase.. shouldnt ex...ohh i heard about sma, scary desiase.. shouldnt exist at all!<br /><br />http://yuliconversations.blogspot.com/Yuli Conversationshttps://www.blogger.com/profile/11141415160470283938noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-67272327363623520522012-05-02T16:13:57.854-07:002012-05-02T16:13:57.854-07:00Thank you for sharing this. It's so nice to he...Thank you for sharing this. It's so nice to hear that you are able to be comfortable with your nephew, and love him and his family in that way.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-71502680037539577652012-05-02T15:41:22.693-07:002012-05-02T15:41:22.693-07:00Thank you for sharing, I will pass it along for su...Thank you for sharing, I will pass it along for sure.Kirahttps://www.blogger.com/profile/17575752353533259832noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-54448941094525899792012-05-02T13:07:03.049-07:002012-05-02T13:07:03.049-07:00Thanks for sharing this Alicia, he looks like such...Thanks for sharing this Alicia, he looks like such a little sweetie. Just shared this video on my Facebook page.<br />xo<br />MegMeg Arnoldhttps://www.blogger.com/profile/05381100378389170374noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-28186679626437273122012-05-02T10:59:10.498-07:002012-05-02T10:59:10.498-07:00You're so tender and loving! I love this post,...You're so tender and loving! I love this post, I love that you can admit you were not comfortable. Many people would just avoid the situation. You're the best Aunt ever :)thanks for sharing!Libby A.https://www.blogger.com/profile/16085207928952408856noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-85436562590651060692012-05-02T10:48:26.588-07:002012-05-02T10:48:26.588-07:00I just posted on SMA also. Only I linked it to Ave...I just posted on SMA also. Only I linked it to Avery's (www.averycan.blogspot.com)blog. This is such a horrible, over looked disease. I hope your family all the best, and that there will soon a cure.Tere Shakehttps://www.blogger.com/profile/11929930221182230819noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-38836615030023424112012-05-02T09:57:27.769-07:002012-05-02T09:57:27.769-07:00I think what your sister is doing is great!! I wis...I think what your sister is doing is great!! I wish y'all the best!! And Evan is precious by the way!! :)<br /><br />xo Morgan<br />dailydoseblog.com (formerly morgancharleighsmith.blogspot.com)Anonymoushttps://www.blogger.com/profile/05569011485453693983noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-66858019566067168272012-05-02T09:53:19.709-07:002012-05-02T09:53:19.709-07:00Thank you for posting on this. SMA is something I&...Thank you for posting on this. SMA is something I've only become recently aware of and getting the word out is so important. Evan is adorable :)Callie {FirstComesLove}https://www.blogger.com/profile/11797961455838759223noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-46925788062408235382012-05-02T09:33:18.237-07:002012-05-02T09:33:18.237-07:00perfect, I will for sure spread that. and it is al...perfect, I will for sure spread that. and it is always good to admit, when we're scared. it is human to feel so. no stranger to me too.anntonhttps://www.blogger.com/profile/13616718020341567893noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-47986694721373154382012-05-02T08:19:36.174-07:002012-05-02T08:19:36.174-07:00That would be so awesome if she was able to do tha...That would be so awesome if she was able to do that with Josh Groban! I loved reading this post bc I don't know much about SMA. Thanks for sharing!Carliehttps://www.blogger.com/profile/10316824065903294967noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-28222146013946733742012-05-02T07:12:46.532-07:002012-05-02T07:12:46.532-07:00I hope it all works out!! I'll definitely pass...I hope it all works out!! I'll definitely pass this along. Good luck! What a sweet little guy. XpThe Millershttps://www.blogger.com/profile/13519326589154498885noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-36324940917002326072012-05-02T07:11:04.674-07:002012-05-02T07:11:04.674-07:00What a wonderful, heartfelt initiative! Evan is lu...What a wonderful, heartfelt initiative! Evan is lucky to have an aunt like you who loves and cares for him so much! Like others, I'm glad you're feeling confident and assured about assisting Evan after the camp. :-) Hope the video goes viral and gets oodles of hits! I'll pass it on to peeps!Pretzel Thiefhttps://www.blogger.com/profile/12676546206050336770noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-42472391497435743092012-05-02T06:54:38.268-07:002012-05-02T06:54:38.268-07:00I've already encountered this illness when I w...I've already encountered this illness when I was having an OJT in a rehab center. So sweet of you for posting this. =)<br /><br />http://sassychunny.blogspot.com/Chunnyhttps://www.blogger.com/profile/16033794328741316650noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-53981963150771212132012-05-02T06:54:16.596-07:002012-05-02T06:54:16.596-07:00Great post. Thank you for teaching us more about i...Great post. Thank you for teaching us more about it. He is such a sweetie! And what is awesome that you guys went to camp with them here in Canada. :)J and Ahttps://www.blogger.com/profile/02511831114292960429noreply@blogger.comtag:blogger.com,1999:blog-699693038908396892.post-71766200209562366412012-05-02T06:52:46.560-07:002012-05-02T06:52:46.560-07:00I hope this video really takes off & that Evan...I hope this video really takes off & that Evan could get the help he needs. Would be wonderful to have a cure! I went to school with a girl who had this.Samanthahttps://www.blogger.com/profile/12267311177081002256noreply@blogger.com